Options for screening and early detection may include screening of the kidneys, such as ultrasounds or MRI, regular skin examinations by a dermatologist, and screening for lung cysts.
Risk management decisions are very personal, and the best option depends on many factors. Screening typically begins earlier than in the general population, and is often more frequently done. But it is important to discuss these options with your doctor.
More information – see BHD Foundation.
FLCN