Management

•    Care coordinated by key clinician (hospital or community paediatrician or GP)

•    Management of learning and behaviour: Paediatric MDT assessment for developmental delay, ASD/ADHD and complex behavioural                    patterns, educational support where required.

•    Investigations that might be indicated in individual patients: renal ultrasound, MRI brain scan.

•    Referrals and ongoing surveillance that may be required: neurology for seizures and movement disorders; cardiology if heart problem is            identified; dietician for feeding issues; surgery for renal malformaitions, ophthalmologist for possible strabismus, feeding evaluation                   related to hypotonia, craniofacial team if concerns about craniosynostosis.