BPANready Natural History Study: http://nbiacure.org/our-research/in-the-clinic/bpanready/
The purpose of BPANready is to collect longitudinal natural history data with the goal of identifying outcome measures for use in future clinical trials.
For more detailed information, see the ClinicalTrials.gov listing: https://clinicaltrials.gov/ct2/show/NCT02587858?cond=BPAN&draw=2&rank=2
WDR45