SKI

Clinical Characteristics

Patients may present with these features:

  • Craniosynostosis
  • Skeletal muscle hypotonia
  • Intellectual disability
  • Dolichocephaly
  • Proptosis
  • Hypertelorism
  • Downslanting palpebral fissures
  • Myopia
  • High arched and narrow palate
  • Retrognathia
  • Arachnodactyly
  • Camptodactyly
  • Scoliosis
  • Cervical spine abnormality
  • Pectus deformity
  • Joint hypermobility
  • Joint contractures
  • Inguinal hernia
  • Mitral valve prolapse
  • Aortic dilatation

Patients with a genetic variant affecting amino acid 180 (Thr) display a milder morphological phenotype with a marfanoid habitus and no intellectual disability.